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Healthwatch is committed to providing a transparent and honest view of health and social care services. This is your opportunity as the health or social care provider to have your say on comments the public have left. It is designed to be constructive and allow both sides to have a fair and equal say in the matter so please:

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I'm employed by Norfolk and Norwich University Hospital NHS Foundation Trust (NNUH) and have authority to leave this response *.

Original Feedback for Norfolk and Norwich University Hospital NHS Foundation Trust (NNUH):

1

Surgical errors poor after care

After many wrong diagnosis from childhood I finally was Diagnosed in 2013 with hereditary PRSS1 pancreatitis and told there is nothing more that can be done for me, I’ve had many failed ercp to remove stones and a failed operation in a London hospital, was referred back to nnuh in 2014, had a nasal jujudenum tube for 5 years but had many many problems with them not being put in the correct position or would displace, 2017 had a low profile stomach jundenal tube inserted - was suppose to have key hole but when awoken had to have surgery to place the tube which has now left me with a 8-9 inch scar - I am having continuous problems & pain with the tube and the hole where the tube is placed and have attended the hospital on many occasions but will be sent home in continuous pain & left to self medicate until anything can be dealt with. I have complained to my consultant and I am either told that the problems would be dealt with or cut short as if it’s not important! I am also promised this will be resolved and not happen again as they will pass information on but I am being still being failed and have no more faith in them, each time I am having the procedure to insert the tube they are not sedating me neither are they listening to me when I explain to them that my veins break when needles are inserted, they continue to use normal size canulars/ needles which results in me being in lots of pain and discomfort & bruised veins - I have been into iru to have a tube replaced and again no sedation given and no anaesthetic! Was very painful and was held down whilst tube inserted- dr explained that the tube isn’t in correct place due to the difficult situation of me not being sedated and expects me to be back within 4 weeks! I have no one to contact for my after care except a voice mail of my consultant receptionist and have to wait 8 months for my appointments to be seen - I’m scared to go back to the hospital or continue my tube feeding due to this horrendous experience but I feel I should not be left to feel the rest of my life I have left should be lived in pain.